CFP extended: ‘Disability and Shame’, Review of Disability Studies

Deadline extended!
Call for Papers: Disability and Shame

Deadline: 1st June 2018
Anticipated publication date: 1st June 2019 (Volume 15, issue 2)

The Review of Disability Studies: An International Journal is issuing a Call for Papers for a special forum on the subject of shame and disability, broadly conceived. It is hoped that through critical discourse addressing the historical and current contexts, contributing factors, effects, and responses to shame, greater understanding of this phenomena will diminish discrimination and violence.

Full papers should be submitted directly to RDS online at http://bit.ly/RDS_AuthorGuidelines no later than June 1, 2018. Please submit to the category “Forum – Disability and Shame”.

For questions about the content of the Forum, please contact the guest editors John Jones, jjones@truman.edu, Dana Lee Baker, bakerdl@wsu.edu, or Stephanie Patterson, stephanie.patterson@stonybrook.edu.

For questions about the submissions process, please contact rdsj@hawaii.edu.

Submissions to this special issue will undergo a process of peer-review. Authors will be notified of whether their papers will be invited for consideration in the forum by August 1, 2018. Prospective authors are encouraged to consult the RDS website at www.rdsjournal.org for more information about the journal and its formatting guidelines. Authors are encouraged to review previous issues of RDS in preparing their paper. Please note that initial acceptance of an article does not guarantee publication in RDS. RDS is a peer-reviewed, multidisciplinary, international journal published by the Center on Disability Studies at the University of Hawai‘i at Manoa. The journal contains research articles, essays, creative works and multimedia relating to the culture of disability and people with disabilities.

Disability and Shame Forum Overview

Shame plays a powerful role in social interactions, beliefs, and institutions. Shame and shaming take varied and quite diversely motivated forms. Shame exists as both a cultural and psychological construct, stimuli for and reactions to which are heavily context-dependent. For much of history and across varied cultural contexts, disability provoked shame. Whether understood as the result of personal failings, sins of a family, misapplication of scientific findings, or empirical evidence of an unhappy deity, experiencing disability involved largely unquestioned shaming. During the last decades of the twentieth century, progress much attributed to disability rights movements finally created expanding space between disability and shame.

Yet, shame remains a powerful and often-accepted tool of social control, an incorporated pillar of our social infrastructures along with cultural norms, popular culture, and public policy. For example, in September 2016, Satoshi Uematsu killed 19 patients at a center for disabled people outside Tokyo. In the aftermath, many family members of the deceased declined to speak to the media and asked not to be identified out of shame that others would know that their family members had a disability (Ha & Sieg, 2016). Such a tragic outcome in Japan in response to fear of disgrace signifies a decided need to examine the role of personal and societal shame and how it affects the lives of people with disabilities.

Topics to be explored (suggested, but not limited to):

  • Shame, disability, identity
  • Labelling and shame
  • Shame and relationships
  • Shame and dependency/interdependency
  • Shame and culture
  • Shame and access to public programs
  • Historical connection between disability and poverty
  • Historical shame
  • Diversity and shame
  • Intersectional approaches to understanding shame
  • Reclaiming shame
  • Shame and employment
  • Societal and family shame resulting in violence against disabled people

CFP: Disability Studies Conference, Lancaster (incl. ‘Critical Dialogues in Neurodiversity’ conference stream, PARC)

Location: Lancaster University

Date: 11th – 13th September 2018

Deadline: 31st March 2018

The Lancaster Disability Studies conference brings together researchers, practitioners, policy makers and activists from around the world, to share and debate research, ideas and developments in disability studies. In the 21st Century disability activism plays a vital role in identifying and challenging disablist policy and practices which limit and deny the rights of disabled people across the globe. Disability activism has provided a road map of good practice, offering ways to consider the means by which disabled people can live independent lives. Key questions for Disability Studies in this context are

  • what role does/can/should the academy play in supporting disability activism
  • In what ways can the relationship between the academy and activism develop praxis?

We invite submissions of abstracts for either symposia, paper or poster presentations on current research, ideas, issues and new developments in disability studies. In particular we welcome submissions in (but not limited to) the following areas

  • Disability activism
  • Participatory research approaches and practices
  • Impact of global economic changes
  • Welfare reform
  • War, conflict and political change
  • Institutions, independent living and citizenship
  • Normalcy and Diversity
  • Mad studies
  • Media Cultures
  • History, Literature and Arts
  • Transnational perspectives and the ‘Global South’
  • Borders, boundaries, migration and citizenship
  • Theoretical and methodological ideas and debates
  • Assistive technologies
  • Death, dying and end of life
  • Hate crime, violence and abuse
  • Social policy and legislation
  • Human rights and social justice

Abstracts of up to 300 words should be submitted by 31st March 2018. Abstracts should be submitted via the Conference’s Easy Chair webpage [nb, you have to create an easychair account to make a submission.].

Please contact Hannah Morgan with queries about the call for paper or abstract submission.

This is the call for papers for the special Critical Dialogues in Neurodiversity conference stream by the Participatory Autism Research Collective (PARC):

Whilst there have been a growth in publications and events on this topic, there are also tensions and divides within this area of scholarship (Milton, 2016). In addition, critical research on neurodivergent ways of being other than autism, such as ADHD, is often situated outside of Disability Studies, primarily within the fields of medical sociology or critical mental health.

The vast majority of research published regarding neurodivergent ways of being is closely aligned with clinical practice, resulting in a focus on establishing ways to ‘remediate disorder.’ Whilst there may be indications that this is changing in some quarters, and the view that a neurodivergent way of being can involve potential cognitive strengths as well as limitations is emerging, such views have traditionally been held on the margins. One implication of this has been the exclusion of neurodivergent voices in the processes of knowledge production, leading to research in the field being epistemologically and ethically suspect (Milton and Bracher, 2013).

Whilst seeking and obtaining the views of disabled people is now often a requirement of policy formation or legislation within and across national boundaries, such efforts often remain tokenistic in nature. Another implication is that researchers and policymakers often fail to examine the varying personal and social conditions in which neurodivergent people live, and the impact these have on disablement. Academic narratives about neurodiversity and neurodivergent people and cultures often do a disservice to the diversity of views therein, and can create further barriers by constraining or controlling the way neurodivergent people make their own contributions, are interpreted and are talked about.

This stream led by the Participatory Autism Research Collective (PARC) seeks to facilitate a sharing of views across critical perspectives within the neurodiversity field. We seek to broaden the field to include a diverse range of neurodivergent ways of being, bridging fields and connecting concepts and experiences, and also to make a positive change regarding the input of neurodivergent scholarship and to further a participatory ethos.

We welcome papers contributing to these goals. Indicative themes:
  • Participatory and emancipatory research with and by neurodivergent people – theory, method and impact on policy.
  • Defining and diagnosing: Issues of identity, diagnostic categories, and the use and impact of diagnostic categories.
  • The dynamics of knowledge production about neurodivergent people, such as within critical autism studies.
  • The barriers and opportunities in considering embodied situated knowledge and academic expertise, in particular for neurodivergent people working within academia.

We will welcome submissions for papers, workshops, or other activities. We will also be looking to compile a publication from submissions to the stream.

If you have questions, please contact the chair of the PARC network: Damian Milton, damianmilton.sociology@yahoo.com

CFP: Creative Work for ‘Translating Chronic Pain’ project, Lancaster

The AHRC-funded research network Translating Chronic Pain: A Critical and Creative Research Network is an eighteen month interdisciplinary critical/creative project based at Lancaster University. Our goal is to bring together people living with persistent pain, representatives from pain charities, creative writers, academics, and medical practitioners. We aim to better represent chronic pain experience by disrupting existing expectations of illness memoir, and to challenge current tendencies in medical humanities scholarship of narrative and wellbeing. Unlike traditional long-form illness narratives, our network will produce and explore what we are calling flash’ illness writing:  fragmentary, episode-focused, short-format work, both word and image.

Emerging from the Creative Manifesto, we invite submissions of ‘flash’ illness writing, short-form creative work:

  • which expresses a moment or fragment of experience of persistent pain;
  • which takes either the perspective of a person experiencing the pain or the perspective of a witness (carer or healthcare professional);
  • which captures any dimension of experience – physical, emotional, social, economic, institutional, medical, spiritual, or creative;
  • which communicates in any emotional register, positive or negative;
  • and which can be shared and used by others to try and communicate the vivid, contradictory, and diverse realities of living with chronic pain.

The parameters:

  • short-form creative writing, from 5 to 150 words,
  • in any form (e.g. prose or poetry; autobiography, fiction, or a blend);
  • optionally can be accompanied by a single image (photograph or artwork);
    can also take the form of a single comic ‘panel’ or short sequence, to fit on a single screen;
  • the fragments/moments/glimpses to be shared online with attribution, under Creative Commons Licensing (BY-NC) 4.0.
  • authors can choose to be anonymous, pseudonymous or named.

Deadline:  Submissions will be added to the project throughout 2018,  but the earlier the submission the more likely it is to receive wider exposure, so early submission is encouraged.

Please see the Creative Manifesto and Information for Participants, and you are welcome to submit work herePlease note we are also holding a Flash Creative Writing Workshop on 28th February in Manchester – please see website for further details.

Book Review: ‘Reading the Psychosomatic in Medical and Popular Culture’, ed. Carol-Ann Farkas (2018)

Book Review: Reading the Psychosomatic in Medical and Popular Culture, edited by Carol-Ann Farkas (London and New York: Routledge, 2018).

Dr Cris Sarg, University of Glasgow

Related image

Reading the Psychosomatic in Medical and Popular Culture (2018) is an edited  collection by Carol-Ann Farkas. As is evident from the title this book examines the perceptions/interpretations of the psychosomatic within both medical and lay culture. The essays ‘seek to understand what the psychosomatic does, what uses we put it to, and what work it does for us: medically, socially, and culturally’ (Farkas, 2018, p.2). These essays both complicate and expand the readers understanding of the psychosomatic. This is because the authors do not merely simplify or define the topic but instead examine and explore it from within via multiple disciplinary perspectives, such as the clinical, historical, sociological, textual and cultural.

The first three essays examine the psychosomatic within clinical encounters. Caryn Rubanovich’s essay examines the conflict between clinicians and patients that is the result of the Western construct of biomedicine bringing those that exhibit psychosomatic symptoms into conflict with medical providers in order to gain the status that a definitive diagnosis confers upon them. The second essay by Maria Guilia Marini et al. provides a direct clinical example of the conflict between clinicians and patients affected by syndromes that have historically fallen under the heading of psychosomatic. They examine disease/care narratives compiled by both clinicians and patients who are dealing with fibromyalgia. The premise is that both patients and clinicians can learn from each other via the journals that both groups kept with the eventual hope of improving both the patient and clinician experience within this encounter. Finally, Claire Hooker and Louise Stone’s essay examines the conflict between patients and clinicians when clinicians insist that nothing is wrong, and proceeds to highlight the influence of the wider cultural and social milieu in shaping what we know and how we experience ill health.

Jessica Parr’s essay shifts the conversation from the clinical towards the historical and cultural and looks at the history of emotional eating in America during the twentieth century. She highlights the disconnect in the popular and medical/scientific understandings of excess weight and how twentieth century advancements in research into physiology and metabolism did not have nearly the same level of popular impact when compared to the models that explain overweight individuals that were provided via the psychological and psychoanalytic. These models assume that the act of overeating as a psychosomatic manifestation for unresolved problems of identity and emotion. ‘[T]his idea reinforces social stigmas and continues to endorse a construction of the self that values the belief that the fat body can be understood and regulated through a mind-body framework’ (Parr, 2018, p.66). Further, Amba Sepie’s essay expands on the idea that only certain ideas and theories have social legitimacy over others. Sepie posits that biomedical practices have had a colonizing effect on discourses of “health” and “illness” and have therefore privileged those discourses that have their roots in the “Western” and “scientific”. Sepie further argues that by lessening hierarchies within the biomedical establishment then discourses of health, wellness and illness can in effect be decolonized and the role of the psychosomatic can become more integrated into practice. In short, ‘it is hoped that this chapter may provide encouragement to look more deeply into cosmological constructions that influence how truths are established and power maintained’ (Sepie, 2018, p.83). Seamus Barker and Lorimer Moseley’s essay continues on to challenge the westernized biomedical model, especially as they appear in various editions of the Diagnostic and Statistical Manual of Mental Disorders (DSM). They use rheological and narratological analysis to challenge the implicit power imbalance between clinicians and patients when the psychosomatic is involved in the encounter.

Maria Tutorskaya’s essay shifts the tone towards textual analysis and examines the passage of medical students from lay people to medical students and finally to physicians via what she terms medicalstudentitis, or medical student hypochondria. She explores the phenomena in its depiction in Vikenty Veresaev’s novel The Memoirs of a Physician (1901) and Eric Segal’s novel Doctors (1988). Tutorskaya argues that the psychosomatic experiences of medical students serve as a metaphor for their transition from one internal identity to another, and that ‘the humanizing benefits of literature might not only contribute to students’ cultural niveau but could lead to a more empathic and compassionate practice of medicine’ (Tutorskaya, 2018, p.111).

Olaug Lian, Catherine Robson and Hilde Bondevik’s essay examines how the female body is stigmatized, especially female exhaustion, within society and literature by the largely male medical profession, which has severed to use these medico-moral assumptions particularly about hysteria and neurasthenia from the nineteenth century to the present to essentially enforce gender normative behavior. They conclude that authors have used psychosomatic identities (i.e. hysteria) as a powerful imputes for female characters that cannot, or will not, fit within the prescribed gender normative narrative that society expects of them. In short, ‘[t]he condition has become more medicalized [over time], but instead of removing blame, as medicalization often does, the ailment is now portrayed in a harmfully judgmental manner’ (Lian, Robson et al., 2018, p.125). Then there is Camelia Raghinaru’s essay, which provides a psychoanalytic reading of the television drama The Sopranos (1999-2007). She argues that the “hysterical” symptoms of a number of the characters, particularly Tony Soprano, are the symbolic manifestation of unresolved neurotic conflicts of identity, specifically as they relate to ideas of (hyper)masculinity, ethnicity and class that are a part of American culture of the late twentieth century. Finally, Hannah Tweed’s essay examines the idea of chaos as normal, as seen through Alasdair Gray’s novel Poor Things (1992). Her essay serves to demonstrate the overlap between postmodern aesthetics and ‘the place of controversial mental illnesses and disabilities in twentieth and twenty-first century cultural productions’ (Tweed, 2018, p.142). Tweed concludes that Gray uses ‘the mutability of diagnostic terminology […] [to] challenge the increasingly pervasive stereotypes surrounding representations of cognitive disability and illness in contemporary popular culture’ (Tweed, 2018, p.149).

As a whole the collection spans the full spectrum of the medical humanities, from the clinical to the literary and everything in between. It is somewhat jarring to the reader to move along this spectrum, but this is mitigated by how the essays are grouped thematically. This critique is relatively minor, and can be leveled at most edited collections. Further, each essay forces the reader to re-examine how they understand and what they know about the psychosomatic and its impact in various circumstances, from its origins and perceived validity to the cultural or social background of the participants of an encounter, whether they be clinicians, patients or society as a whole.

 

References:

Farkas, Carol-Ann, ed. (2018). Reading the Psychosomatic in Medical and Popular Culture: Something. Nothing. Everything. London and New York: Routledge.

Workshop: ‘Illness and Language’, Oxford

Location: Lecture Theatre, The Richard Doll Building, 11 Old Road Campus, Headington, Oxford, OX3 7LF

Date: 9am – 2pm, 21st March 2018

“Illness and Language”* is a knowledge exchange event funded by Wellcome Trust, designed to promote dialogue between multi-faith chaplains working at Oxford University Hospitals and academics interested in religious themes within medical humanities.

Programme:

9-9:40 Professor Jane Macnaughton ‘Listening to what is not said: intersubjective relations in the clinical consultation’

9:50-10:30 Dr Neil Vickers ‘The Other as a metaphor for the self: stigma and illness’

10:40-11 Coffee

11-11:40 Dr Katherine Southwood ‘Job’s tortured body and the language of divine assault’

11:50-12:30 Dr Louise Lawrence ‘Blind Spots and Metaphors: Refiguring Sightless Characters in the Gospels’

12:30 Lunch

* CPD applied for. To secure your place on this event please email Katherine Southwood.

Film Screening and Workshop on Disability Studies, Edinburgh

Location: University of Edinburgh

Date: 10am-1pm, Thursday 22nd February 2018

Workshop: ‘Researching disability: Facilitating best practice in inclusive research’

Disabled people have historically been habitually excluded from academic research. Yet, in recent times there has been a shift towards participatory research, and inclusion and participation of ‘users’. However, new researchers to the field or students in the beginning of their research career might be hesitant to conduct research within this field. Researchers might be unsure how to approach individuals with disability, both as partners in research and as participants.  There may also be anxieties about barriers to gaining ethical approval. This workshop aims to help participants to consider these issues, learn from others’ experiences and develop research that is inclusive and empowers rather than focusing on the vulnerability of participants.

We particularly encourage research students and early career researchers to come along and discuss their ideas and get advice and support.

We will provide a panel discussion, workshops, prizes and refreshments.

Ticket are free, and available, along with further details, on our Eventbrite page.

 

Location: University of Edinburgh

Date: 2-5pm, Thursday 22 February 2018

Film Screening: ‘Defiant lives’

Defiant Lives (Sarah Barton, 2016) is a film, telling the story of the disability rights movement in the United States, Britain and Australia, using archival footage and interviews with activists.

The Disability Research Edinburgh network will host this opportunity to see this film , followed by a discussion and refreshments

Booking and further details available on our Eventbrite page.

For more information about the Festival of Creative learning, see http://www.festivalofcreativelearning.ed.ac.uk/.

ECR Fellowships: University of York’s Centre for Future Health

Closing date: 31st March 2018

Duration: 2 years from 1st October 2018

Four prestigious Fellowships are available through the University of York’s Centre for Future Health (https://www.york.ac.uk/future-health/) to support world-class early career researchers in the broad domain of health. The scheme is jointly funded by the Wellcome Trust and the University of York and is open to individuals from across the arts and humanities, sciences and social sciences. Fellowships offer salary in the range of £38,882 – £47,722 per annum for two years starting from 1st October 2018 and project expenses of up to £100,000.

This scheme is intended to provide a stepping stone for the ablest post-doctoral early career researchers to begin a fully-established, independent and externally-funded research career. Previous Fellows worked in areas including history, Medieval studies, social sciences, neuroscience, biophysics, molecular and cell biology, electronics. 

Applicants with interdisciplinary interests and those who have some professional experience from another institution, academic or non-academic, are particularly welcome. We are also pleased to receive applications from people who have had a career break (because of family commitments, ill health or to take on work outside of research) and who wish to re-establish their research career.

Further Information:

The University of York (http://www.york.ac.uk) is a thriving UK Russell group University with particular strengths in the domain of health research and the biomedical sciences including the medical humanities, mental health, neuroscience, infectious diseases, health and social science. 

For more details about the scheme, please see https://www.york.ac.uk/future-health/fellowships/.

How to Apply:

Please visit https://jobs.york.ac.uk/wd/plsql/wd_portal.show_job?p_web_site_id=3885&p_web_page_id=337183 to start your application

The York Centre for Future Health (cfh@york.ac.uk) can advise on all aspects of the application process including eligibility and the first stage of identifying a suitable academic sponsor in the applicant’s target department.

CFP: ‘The Gut-Brain Axis’: Cultural and Historical Perspectives, Glasgow

Date: 4th-5th May 2018

Location: University of Glasgow

Research into the so-called ‘gut-brain axis’ has seen extraordinary growth in the past decade as microbiologists, neurologists and nutrition scientists have discovered new ways in which these supposedly separate parts of the body interact. Whereas our guts, brains, nervous systems, and behaviour were thought to be distinct, increasing evidence shows that the boundaries between them are more porous. Both scientific and popular interest in the topic continues apace, with a constant stream of publications aimed at specialist and lay audiences, and the first international Gut-Brain Axis Summit taking place in San Francisco in December 2017.

Important work has also been undertaken on gastro-psychic connections by researchers from the history of medicine, literature and psychology, but so far, there has been little in the way of a coordinated, targeted contribution to the debate on the gut-brain relationship from the humanities and the social sciences.

This workshop will consider the value of cultural and historical perspectives on the relationship between the gut and the brain, an area of our lives that so emphatically crosses somatic, emotional and psychological experiences. The event will engage with this topic from a critical perspective, not only taking new approaches but also asking:

  • What are the risks or challenges involved in studying the gut-brain relationship from perspectives beyond the strictly biological or the clinical?
  • How can disciplines beyond science contribute to the understanding of this area of human experience?
  • How does a humanities and social sciences approach differ from and / or enrich scientific research on the gut-brain axis?
  • What can a cultural and historical perspective on digestive health achieve?
  • How might different cultural understandings of the gut-brain relationship be communicated to scholars in the sciences, non-academic audiences, and public health practitioners and organisations?
  • Who might the audiences be for this form of research?

Topics may include but are not limited to:

  • The implications of categories such as race, class, age, or gender on understandings of the gut-brain relationship
  • Variations across nations and cultures in understanding the links between the gut and brain
  • The history of the gut-brain relationship
  • Shifting definitions of ‘the gut’ and ‘the brain’ according to discipline, nation or time period
  • The construction of the gut-brain relationship through productions such as literature, the visual arts, social media, and film
  • The ways in which links between the gut and the brain might  contribute to our understanding of what it is to be human

Contributions are invited from scholars in any area of the humanities and the social sciences, but preference may be given to papers focusing on the modern period (1800 to the present). Papers focusing on non-Western nations are strongly encouraged, as are proposals from postgraduate and early career researchers.

The confirmed keynote speaker for this event is Professor Elizabeth Williams (Oklahoma State University), who has published seminal articles on psycho-gastric conditions in the eighteenth and nineteenth centuries. She is currently completing a study of scientific and medical thinking about the appetite for food from the Enlightenment to the mid-twentieth century.

Proposals of 250 words for 15-20 minute papers, along with a 150-word biography, should be sent to manon.mathias@glasgow.ac.uk by 31st January 2018.

Registration Open: ‘New Historical Perspectives on Ageing and the Life Course’, Leeds

Date: 19th – 20th March 2018

Location: Weetwood Hall, Leeds

Registration is now open for the forthcoming conference “New Historical Perspectives on Ageing and the Life Course”. This two-day event will bring together scholars from across the UK, Europe, Asia and the USA, to share new perspectives on the role and value of historical approaches to ageing across disciplines in the humanities and the social sciences.

The two-day conference, including lunch, is free for all delegates. For details of the schedule, and to sign up to attend, visit the conference Eventbrite page. A detailed programme, containing abstracts and biographies for all speakers, is available here. The original CFP, is also available. Please also feel free to forward details on to colleagues in other departments and institutions.

CFP: Disability & Society Special Issue 2019, ‘Disability, Activism and the Academy’

Disability, Activism and the Academy: Special Issue 2019 

Our 2019 Special Issue aims at keeping alive the original values and intentions of the journal to bridge the gap between the academy and activists in the disability arena. Through the pages of Disability & Societywe have always wanted to reflect debates and struggles taking place locally, nationally and internationally to improve the lives of disabled people according to the priorities of disabled people themselves.In the next Special Issue we wish to bring together fresh insights into the relationship between disability, activism and the academy and to explore how this is playing out against the backdrop of very difficult times in which disabled people are bearing the brunt of global upheavals and conflicts, austerity policies and the changing nature of political activism amongst disabled people.

We invite contributions which will examine the relationship between disability, the academy and activism in relation to any chosen themes. Back in our first Editorial of 1986 it was said ‘we do not wish the journal to be viewed as a vehicle for merely representing professional perspectives. Thus we want to encourage the consumers of services and people with disabilities to speak for themselves’. We strongly encourage articles written in partnership for the Special Issue, though this is not a prerequisite for submission.

Submissions might focus on:

  • Examples of collaborative activist projects
  • Inclusive research and development strategies
  • The role of changing technologies in activism
  • How accessible is the academy?
  • Power relationships and the reality of participation in decision-making processes
  • Disability policy and service user agendas
  • The work of service user representative organisations
  • Globalisation and the changing nature of political activism amongst disabled people
  • Papers which seek to place debates within the conditions of oppression shared by others involved in liberation struggles.

There is an established well-informed international audience for the journal. Authors are expected to consider this wide readership and to exhibit knowledge of previously-published articles when submitting their work for consideration.

This Special Issue will be published in 2019.

Submission Procedures

Submissions should be made online at the Disability & Society ScholarOne Manuscript site  New users should first create an account. Once a user is logged onto the site submissions should be made via the Author Centre.  Maximum word length is 8,000 words (excluding bibliography).

The final deadline for receipt of papers is 31st August 2018. No papers will be considered after this date.

For further advice on the submission procedure please go to Disability and Society.